One of the wonderful side-effects of my injections (which, I just found out this week) is insomnia in 16% of patients. Wonderful. Nothing helps chronic pain like not getting enough sleep! Tonight, I'm trying to take it in stride and instead of laying in bed trying to fall asleep while my mind races around thinking of all the things I need to get done, I'm getting some of the things done! I just swapped a load of laundry, swept and mopped the downstairs floors, and unloaded and reloaded the dishwasher. Tonight when I do finally fall into bed, I hope to not only be good and tired, but also not have anything to think about because everything that I can be doing while awake is done!
Since I was in so much pain with my injections, my Doctor decided to take my dose of AMG 531 down to 7mcg from 8. Since my platelets were down on Tuesday AND we lowered the dose, I went in on Friday for another platelet check to make sure we didn't need to treat with IVIg over the weekend. Happylujah! My count was 193k!! I was very encouraged by this and almost skipped out of the office on my way to the weekend.
The pain is not much better this week with the lower dose. I am finding this week that I wake up (with no pain meds in my system) to stiff and painful joints. I have a hard time even getting out of bed most mornings. Once I am up, moving and have some Doans or Oxy in me, I start to feel better, but getting out of bed SUCKS.
My floor should be dry now, so I'm off to replace the furniture and finish up what I need to so I can go to bed!
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I am a Wife to a beyond amazing husband, a Stay-at-Home-Mama to 3 beautiful children (and a dog, Scout!), and I deal with a life-threatening blood disorder on a weekly, if not daily, basis. This blog is a mixture of our day-to-day life and the medical pieces that play a role in our life together.
Blog Bird Background - a Reminder that God knows and still cares- even about my hair falling out.
Matthew 10:29-31 "What's the price of a pet canary? Some loose change, right? And God cares what happens to it even more than you do. He pays even greater attention to you, down to the last detail - even numbering the hairs on your head! So don't be intimidated by all this bully talk. You're worth more than a million canaries. (The Message Translation)
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2 comments:
Oh no! I hope you got some sleep! I am the same way...might as well get stuff done! With 4 kids, there just doesn't seem to be enough hours in the day.
Should another bout of insomnia get you again tonight, I'll leave our front door unlocked. The mop will be in the kitchen and please use two softener sheets in the dryer.
Seriously though, nothing is worse than not being able to get sleep when you want/need it. I am blessed with the ability to turn my brain completely off when it's time to go to bed. Heather gets insomnia all the time, as her mind always seems to be racing. I feel for her and you!
When I do have times where I can't get to sleep, I actually try the stupid old adage of counting sheep, or doing some math thing, or even praying. Just something that gets my mind focused on something other than the craziness of the day.
Good luck!
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